August 9, 2013 - Day 125
Bella had a nightmare last night so she came into my bed! Do you realize how significant that is? She got herself out of bed in the middle of the night and into her wheelchair, went to the bathroom without assistance while sleepy, and then got to my room and climbed up into my bed! I've never been more excited to see a child in the middle of the night!
I've heard from adult GBS patients that regaining bathroom independence is their single most significant part of recovery. I can only imagine how it feels for an adult when it is so significant for a child.
Also, I had submitted some follow up questions to Bella's neurologist Dr. Castro after our visit last Wednesday. One was about two antibodies in the blood that when positive can indicate CIDP. Shortly after Bella's IVIg treatment, her blood was positive for these 2 antibodies but because Bella had so much donor blood, Dr. Castro wanted to retest. This time those antibodies are negative! While that doesn't mean with any certainty that Bella does not have CIDP, it is at least one less indicator that she does.
God is great! Thank you for the continued prayers!
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