October 1, 2013
8:21 PM
We've been admitted overnight so Bella can be closely watched. So far her motor skills are not affected. It's just the Vision. We're hoping that this is not another GBS relapse. One of the ~10 doctors we've seen since we entered the ER (the Hospitalist) dared to utter MS at me. Dear God, NO!!! He says that in children MS usually presents as vision problems. He also said the youngest MS patient he's diagnosed is 13.
The general docs (hospitalists) will put in for a neuro and ophthalmology consult first thing in the morning. Based on the results of that consult, they may do an MRI tomorrow. The last MRI was on April 8th and what proved the GBS dx.
I don't think I can take this again. Lots of continued prayers needed.
4:48 PM
Prayers Needed! Bella started experiencing double vision again yesterday. The last time she had that was in the hospital in May. Doctors are recommending we take her to the ER to be evaluated by a neurologist. Times like this it would be really nice if we had a good neurologist in Austin instead of Dallas so we could avoid the ER! we're hoping this is just related to allergies or a headache and not a relapse. I can't take the hospital again! Please not again!
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