October 2, 2013 - No Answers Yet

October 2, 2013

I tried to post this last night but I was working off the iPad and could not copy over from Facebook.

2 PM:
Bella finally had a neuro consult at about 11 this morning. Bella's eyes are pretty messed up. Without the eye patch, when she looks at me, it actually appears that she's looking to the right of me. With the patch, she's fine. Neuro is comforted by the fact that Bella's motor skills are still strong. He said for a GBS patient she's doing awesome. He wants to have an MRI of the brain to look for one of the optic nerves (processing so much that I can't recall which nerve). He's expecting that to be clear. We won't get into the what if it's not clear yet. He also wants to run 2 other tests to be cautious - respiratory and blood pressure sitting and standing. With a GBS patient, you cannot be too cautious (his words and I agree). Assuming all tests are clear and done today, we could possibly go home today. The later it gets in the afternoon without the MRI, the more doubtful I am that we'll get out of here today.
We're still waiting to see the opthamalogist too.

11 PM:
Today was quite frustrating. We waited and waited for this MRI. Turned out we were waiting for the attending neurologist to confirm what the resident neurologist suggested at 11. We didn't see him until 5 so we didn't get the MRI today.

On the plus side, the neurologist felt that Bella was well enough to go home and do the MRI and opthamalogy visit outpatient. So we got discharged tonight! It's very unsettling to not have a treatment plan or clear indication of what's going on but it's nice that the doctors are not worried enough about Bella to keep her in the hospital. Before we left, Bella handed out some Giving Bella Strength bracelets to the nurses.

We are all home tonight. Thank God! We'll see what tomorrow brings. Please pray the treatment is as simple as a course of steroids!