Bella and I heard this song yesterday & decided it should be her new mantra. The verses aren't appropriate but the chorus works. I played it for her a few times when she was too down to get out of bed. It worked a little. She closed her eyes & mouthed along with the chorus and decided to try.
http://youtu.be/yTCDVfMz15M - Try by Pink
http://youtu.be/yTCDVfMz15M - Try by Pink
Heading to rehab in a big ambulance.
There's a bed for me in the rehab hospital! I'm so excited about that part...not so sure yet about the rest of it yet.
Bella had a great day today! She was in good spirits this morning and stayed that way most of the day. Because of the transfer to rehab, she didn't have any therapies. I'm disappointed with that - it feels like a day lost. We spent the morning waiting for the ambulance transfer to happen. We were first told 9 then 10:45 and they finally arrived at 11:20. Bella actually fell asleep in the ambulance.... They made me ride in the front seat, which was probably less bumpy but I didn't like not being able to see Bella.
The arrival at BOCH was kind of of disappointing. We got here right at noon and the therapists were in a meeting and our nurse was checking in another patient. The whirlwind of doctors started soon enough though. Bella met and was evaluated by 2 doctors, the physical therapist and the occupational therapist. We were also introduced to the child life person, the social worker, the teacher, and some other people I can't remember. We took a tour, unpacked, put posters on the wall, ate dinner at 5:30, and twiddled our thumbs. (Meals are served on a schedule here, which is good but dinner at 5:30 is a big adjustment.) After the extreme busyness of the hospital plus all the activities that were available, this seems very slow-paced. Of course, as I said, she hasn't started therapy here yet.
The most annoying part of today was the conflicting messages I received about when we'll get discharged. I have not told Bella but the lady from yesterday (who has no medical training that I know of) said perhaps Sunday. Insurance approved 7 days so I was thinking no later than Monday. The social worker and another person here said they'd get approval for more days. I don't want more days! I just want to be home with my entire family together! It's hard at night when there are no treatments and long after the therapy is over for the day to be stuck in a hospital.
Whenever we are discharged, we will definitely go to outpatient rehab and most likely we'll do that in Rockwall because it is a nicer drive than going into Dallas.
Bella is now asleep. We were keeping pretty late nights at children's because of the medicines and doctors that would come in late at night. It will be good for her (and me hopefully) to start going to sleep earlier.
A few random facts: it's 55 miles each way from our house to the hospital. That's a lot of miles on my car and that drive is exhausting!
Bella had to ride in an ambulance today because insurance figures if you're well enough to leave the hospital in a car, you're well enough to go home.
Based on first impression, the food here is really poor compared to what we ate at children's. May be doing a lot of take-out for both of us!
Bella still doesn't understand what's wrong with her or why/how she got GBS. I've tried explaining it to her, tried reading the kids health explanation. We don't know the why or how but I feel bad that the doctors and I haven't come up with a good way to explain this to her.
The most annoying part of today was the conflicting messages I received about when we'll get discharged. I have not told Bella but the lady from yesterday (who has no medical training that I know of) said perhaps Sunday. Insurance approved 7 days so I was thinking no later than Monday. The social worker and another person here said they'd get approval for more days. I don't want more days! I just want to be home with my entire family together! It's hard at night when there are no treatments and long after the therapy is over for the day to be stuck in a hospital.
Whenever we are discharged, we will definitely go to outpatient rehab and most likely we'll do that in Rockwall because it is a nicer drive than going into Dallas.
Bella is now asleep. We were keeping pretty late nights at children's because of the medicines and doctors that would come in late at night. It will be good for her (and me hopefully) to start going to sleep earlier.
A few random facts: it's 55 miles each way from our house to the hospital. That's a lot of miles on my car and that drive is exhausting!
Bella had to ride in an ambulance today because insurance figures if you're well enough to leave the hospital in a car, you're well enough to go home.
Based on first impression, the food here is really poor compared to what we ate at children's. May be doing a lot of take-out for both of us!
Bella still doesn't understand what's wrong with her or why/how she got GBS. I've tried explaining it to her, tried reading the kids health explanation. We don't know the why or how but I feel bad that the doctors and I haven't come up with a good way to explain this to her.
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