May 8, 2013 - Day 32

May 8, 2013 - Day 32

11:57 AM:
Quick prayers for the insurance idiots to get over themselves! They are talking about adding an 8th plex treatment in Austin to prove medical necessity for the transfer to Dell. I'm a little ticked off that they would unnecessarily make her go through this again just to give them a reason to pay for rehab in Austin. Nurse did say that more plex would actually be a good thing but she's not the one getting poked and drained every 2 days! 

2:59 PM:
God listened to my begging. Maybe it was my statement saying I trust you, God, and I know this will work out. Funny how things just fall into line when you give them over to Him. Bella will get her cath out this afternoon. No 8th plex needed or required by anyone. She's been accepted & approved at Dell and will transfer via ambulance tomorrow @8 Am. Thank you God!

11:41 PM
So much happened today that it is hard to believe that it started with Bella’s 7th and FINAL plex treatment! We were up and ready for PT at 8:30 but plex showed up at 8:45 instead. Bella did very well with this treatment and never did get nauseous. The neuro doc (not Dr Castro this week) had come in just before the plex treatment started and told us that Bella might have to keep her cath in and have an 8th treatment in Austin in order to meet medical necessity for the transfer to Dell. This is where my extreme stress began (as if my stress level was not already extreme). I talked to a therapist at Dell and the case manager here and neither woman mentioned a need for an 8th plex. Neither sounded very optimistic about getting us in Dell tomorrow either. Anyway, as you noticed from my earlier post it has all worked out and Bella will be transferred to Dell Children’s via ambulance tomorrow. We are set for 8 AM but if any kind of emergency comes up, we will get bumped to later in the day. Brian flew up to Dallas tonight so he will ride in the ambulance with Bella and I’ll follow in my car. God is great and He does answer prayers! I just had to release this worry to Him.
Bella never did get her PT session in today but had OT as scheduled. She colored a Mother’s Day card for me while standing and made tissue flowers.
They finally took her cath out at about 5:30. The most painful part of that process was pulling the tape off of Bella’s sensitive skin. She now has a gauze covering the hole and more tape. Unfortunately, she will always have a scar where the vas cath was placed. Hopefully it will become less noticeable as she grows.

While Bella still seems stronger, she has been in so much pain the last 3 days that I must admit I’m very concerned. The doctors are not worried so I guess I shouldn’t be either. Her back hurts so badly that she has trouble pushing through her therapy sessions sometimes. She did so awesome on Sunday and all the days since then have been comparatively disappointing. I hope the transfer to Austin will give her a new motivation and that the rehab center there will help her get stronger faster.

The nurses are all celebrating Bella’s release tomorrow. It’s so cool how excited they get for her to move on. I wish we could take some of them with us – there are some really amazing people here.

This song is so appropriate for today: “I give it to You. I give it to You. All my worries. All my burdens. I give it to You.” – Martina McBride