Friday, June 28, 2013

May 3, 2013 - The Band Perry

May 3, 2013 - Day 27


They only sang 2 songs but they were awesome! And so charming





Today was a good day. There was some miscommunication about Bella’s PT so we were up and (almost) ready to go at 8 and PT didn’t show. She had told nurses time would be 8 on plex days and 10:30 on non-plex days. Oh well! When she did have PT, her session went well. She practiced standing up (with assistance of course) and even stood at a table and played Connect 4. She took some rest breaks but this will still a huge improvement.
We saw The Band Perry early this afternoon! They had a mini road crew set up their instruments and stage and test the mics. They only performed 2 songs (Hip to My Heart and All My Life – my fave of theirs) but they sounded awesome! They were extremely charming both on stage and later when we met them. Bella had made a picture for them and gave them each a bead necklace (they are wearing the necklaces in our picture with them). Neil (the one with the shorter hair) gave Bella his only guitar pick (at least he said it was the only one he had on him). It was so nice to escape for a few minutes and get caught up in some music that we love.
We had just enough time to rest after the concert before OT came by. We went to the downstairs gym today. OT had Bella attempt to color a picture that she taped to the door. When you’re attempting to regain strength, this is a very difficult task! She did well but was very frustrated with herself that her arms were so weak and she could not color in the lines very easily. Then she sat on a stability disc and shot baskets with weights on her wrists – and she made about 90% of the baskets! Both of her therapists were very pleased with her efforts today.
Dr. Castro was also very pleased with Bella’s strength today. She’s definitely showing improvements! Dr. Castro also said that the case manager is having trouble finding a place in Austin to take Bella and offer the treatments that she needs. I said we’re hoping for Dell Children’s and apparently that is the place they are trying to get her into. We’re still talking about a Thursday or Friday transfer – just not sure where we’re transferring to yet.
Brody’s t-ball game got rescheduled to tonight so Brian finally got to see him play. Brian is taking the night shift tonight and tomorrow and then I’m on duty all next week.



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