4:12 PM:
2nd plex went much better than the first. Will post more details later but Brian took this picture of the plasma that they extracted today from Bella's blood.
A few pics from Saturday. Thanks Jill for the Headbandz game!
8:48 PM:
Bella had a better day overall today. It didn't start so well though. Because today was a plex day, they came to draw her blood just before 8 this morning. The inexperienced lab tech struck out twice so they had to call in the IV team. We've insisted that they schedule the IV team for each blood draw. Poor Bella says she has 10 holes in her body since she got to the hospital this time. She's been stuck too many times!
The plex went well. Bella did get nauseous but managed to control it. The neuro doc explained plex to Brian today as similar to an oil change.
The EMG is scheduled for tomorrow morning. EMG will have two parts - the first part is checking nerve conduction and the second part is intramuscular involving a needle. This test should tell us if the nerves themselves are damaged (a rarer and more intense GBS) or if it's just the nerve coverings (the typical GBS). We're praying that it is just the nerve coverings because recovery will be shorter and is expected to be complete(I.e. weeks/months). If the nerves are damaged, recovery could take months or years and Bella may never get back to pre-diagnosis strength. Don't even want to think about that.
Bella was feeling good after her plex so we gave the green light for visitors. She got to see Uncle Steve, Aunt Amy, and cousins Emma & Ben and then her teacher Mrs (Amy) Huggins. Faith, Brody and I were there too of course. Brian took Faith & Brody home and Bella and I decided we wanted Tex-mex. Unfortunately, Brian had taken my car and his keys (because I assured him there was no way I would need to leave Bella for any reason but Bella's craving was enough she would have let me go). We settled for ordering quesadillas from the hospital menu and for the first time in weeks, Bella ate her entire dinner of quesadillas, salad, strawberries and water. We celebrate any victory we can - no IV fluids for this girl!
We should get a regular OT and PT schedule tomorrow so although there is no plex tomorrow, she will have a full day.
The plex went well. Bella did get nauseous but managed to control it. The neuro doc explained plex to Brian today as similar to an oil change.
The EMG is scheduled for tomorrow morning. EMG will have two parts - the first part is checking nerve conduction and the second part is intramuscular involving a needle. This test should tell us if the nerves themselves are damaged (a rarer and more intense GBS) or if it's just the nerve coverings (the typical GBS). We're praying that it is just the nerve coverings because recovery will be shorter and is expected to be complete(I.e. weeks/months). If the nerves are damaged, recovery could take months or years and Bella may never get back to pre-diagnosis strength. Don't even want to think about that.
Bella was feeling good after her plex so we gave the green light for visitors. She got to see Uncle Steve, Aunt Amy, and cousins Emma & Ben and then her teacher Mrs (Amy) Huggins. Faith, Brody and I were there too of course. Brian took Faith & Brody home and Bella and I decided we wanted Tex-mex. Unfortunately, Brian had taken my car and his keys (because I assured him there was no way I would need to leave Bella for any reason but Bella's craving was enough she would have let me go). We settled for ordering quesadillas from the hospital menu and for the first time in weeks, Bella ate her entire dinner of quesadillas, salad, strawberries and water. We celebrate any victory we can - no IV fluids for this girl!
We should get a regular OT and PT schedule tomorrow so although there is no plex tomorrow, she will have a full day.
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