8:54 AM:
They came in and woke Bella at 8:30 to take us for a surprise EMG. Bella is really scared & neither of us has eaten
11:21 AM:
Oh my God! That was the worst thing I have ever experienced. It was worse than my labor with Bella when I was at 10 cm before the epidural took effect. It was seriously like watching someone being tortured. She screamed and cried and begged them to stop. We discussed 1/4 of the way through postponing until Monday and having her placed under anesthesia. The doctor really discouraged waiting and gave me a look that told me it might not be safe to put her under again (3rd time in 3 weeks). Bella agreed timidly to go on. She said that the pulses in her hand/arm felt like getting beat with a hammer. The absolute worst part was when they wrapped 2 metal rings around her pinky and sent shocking pulses. The leg was a little better. I'm not sure if that's because the nerves are more damaged in her legs or she was able to focus on distraction (playing smack that gugl on child life's ipad). I promised her anything she wants - told her I would buy her a pony. I think I'm going to make out better than that and possibly just be buying another American girl doll. It was SO awful! We are trying to recover now. Breakfast was finally ordered. Bella says the plex, IVIg, even breaking a bone are a breeze compared to what she just went through.
5:07 PM:
We finally got the results of the torture test and Bella has AIDP (the "typical" GBS)! This means the doctors expect (at this point) for her to make a slow but full recovery. The plex seems to be working so it has been extended to 7 treatments (adding Monday and next Wednesday 5/8).
Neuro doc (Dr Castro) did say that she may need to do another EMG if Bella does not improve at the rate expected BUT she would sedate her for the next one. Dr Castro also said that she is very pleased with Bella's improvements today. They are minor but significant.
There is still a potential that Bella has chronic GBS (CIDP) but we would not be able to rule that out for quite some time. Basically, we will get to know Dr Castro extremely well and will be visiting her in dallas for a long time.
For now, we are breathing a sigh of relief and praising God for the good news. MORE HAPPY TEARS!!!
Thanks so much for the prayers!
From earlier tonight - all snuggled up with her cheery pillowcase and quilt made by her very talented great-grandma
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