Bella's PT said again today that it was her best day of therapy yet! She walked alone with her walker and tried on one too small leg brace/foot lift. Bella said the brace (even though too small) was miraculous because it lifted her toes off the floor and made stepping so much easier. The PT has finally ordered some for her. I've been asking for a month - not really sure why it took this long.
When she's taking steps at home - especially when she's barefoot - she has to look down at her feet to make sure they are planted flat. She cannot feel when she is standing on the side of her foot and could seriously damage her ankles if she's not careful. According to another GBS survivor, broken bones are an extreme concern for GBS patients because the messed-up pain signals might not get the message to the brain that there is a break. Just a little more for us to worry about!
Look at what I found - bittersweet memories. Hope to see her tap dancing again one day. This was 4 years ago.
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